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起立性調節障害と診断され治療を始めて早６年…最近難病と分かりました のんびり闘病しています ほぼ寝たきりです PS8-9 #ACTH単独欠損症 / #脳脊髄液減少症 / #カルニチン欠乏症 / #線維筋痛症 #体位性頻脈症候群
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